Community & Resources
On this page, you’ll find links to communities and resources for those affected by hyperacusis, noxacusis, middle ear myoclonus (MEM), tonic tensor tympani syndrome (TTTS), and tinnitus. These include online support groups, educational websites, and other helpful tools to connect, learn, and find guidance.
Discord
Hyperacusis Guide Discord Server
This is our official server and the easiest way to reach us. Our personal experience with hyperacusis, noxacusis, and tinnitus allows us to assist newly affected individuals in finding effective management strategies and treatments.
Hyperacusis Support Discord Server
A community of over 400 members who share their personal experiences, treatment outcomes, and insights. Hyperacusis Guide highly recommends this server.
A community of over 1,300 members dedicated to the surgical management of hyperacusis, with a primary focus on the Silverstein procedure.
Middle Ear Myoclonus (MEM) Support Group
A community of over 2,000 members focused on the medical and surgical management of Middle Ear Myoclonus (MEM).
Tonic Tensor Tympani Syndrome (TTTS) Support Group
A community of over 2,300 members dedicated to the medical and surgical management of Tonic Tensor Tympani Syndrome (TTTS).
Forums
When seeking tinnitus and hyperacusis advice on Reddit and other forums, it’s important to remain wary. Many posts are inaccurate or misleading, and inexperienced sufferers can take a single success story as a guarantee, which may lead to unrealistic expectations.
Other Sites
Hyperacusis Research
Hyperacusis Research Limited, Inc. is a 501(c)(3) non-profit organization dedicated to advancing biomedical research into the underlying mechanisms of hyperacusis, with the goal of developing effective treatments and ultimately finding a cure.
Hyperacusis Central
A collection of personal stories from those affected by hyperacusis, including many accounts of severe and life-altering cases. These stories provide an in-depth look into the lives of individuals severely affected by the condition, offering valuable insight into just how serious hyperacusis can become.
Tinnitus Quest
Currently raising funds to support research focused on developing new treatments for tinnitus.